Monday, May 16, 2011

That's not fair!

Tonight, while Grant was getting ready for bed, he looks at me and says, "Mom, it's not fair that I have to have leukemia and Trent doesn't." He had just taken about 11 pills and Trent went running by the bathroom laughing and playing with Rudy. He definitely realizes that not everyone has to do the yucky things he does. So, we talked about it and I told him he was right, it is not fair. It's a BIG "NOT FAIR". But, he is going to be so awesome b/c he can deal with all the things that are not fair in life. Then, he talked to Rudy about it and Rudy told him how tough this was making him. And that he was so tough for doing all the things he has to do and fighting leukemia. It broke our hearts to hear him talk like that. But, one thing he was sure of, he did NOT want Trent to have leukemia. Praying for a very special friendship between Grant & Trent.

Monday, May 2, 2011

Big Brave Boy

Today was a doctor day. First, Grant had a well visit with his pediatrician. Even though he cannot receive immunizations while he is on treatment, the oncologist suggested that we continue that relationship. All went well and he is perfectly "normal".
Then, we went to the clinic for his regular visit. Grant did an amazing job today. Not only did he not cry, he didn't even make a peep or flinch when he got his poke. When it was time to take it out, it was more of the same. He seemed so big and grown up today. It must be a 5 year old thing. I was so proud of him.
His counts finally came down this month, but they missed the "ideal" range. His ANC was 690. The target range is 750-1500, but it only has to be above 500 to continue treatment. No changes were made to his medications. He begins his 5 days of steroids this evening. He started with a cough on Saturday morning and it has gotten a little worse. Dr. Heym said he sounded clear when he listened to him breathe. Hopefully, he can fight off whatever little bug he may have.
We went to Kindergarten Round-up tonight. Grant is so excited about starting school. Mom is having a hard time for many reasons. Tonight we left b/c I was worried about him being around all those kids with low counts. Ahhh!
Thank you for continuing to keep up with our family. And, as always, we are so grateful for all of our prayer warriors. God answered prayer today!