Tuesday, February 28, 2012

Still at the hospital

Making Goop!

Well, more of the same. Grant's ANC was at 0 yesterday and 44 today. So, we are still waiting. He is ready to come home and everybody else is ready too. He still has the virus that he came in with because his body has not been able to fight it and there is nothing they can do to help a virus. But, the virus is also suppressing his immune system and it can't recover. It feels like he is in a vicious cycle that we can't get out of. It is such a helpless feeling.

Please pray for healing. We know God is in control and we don't want Grant to go home if his body can't handle it. So, we just need his body to be strong and healthy!

Saturday, February 25, 2012

More Waiting.....

How long will we have to wait???? Grant's ANC went down for 3 straight days and finally hit 0. So he had no where to go but up today......wait for it.....to 10. So, he is not going home today and probably not tomorrow. He is feeling good and we are all ready for him to come home. When I told Trent this morning that Grant was not coming home he said, "aww (with a grunt), that silly Grant! What is going on?" That is a good question. Dr. Heym says there is no reason to be concerned, but we just have to wait. Today, they will have to take his noodle out and put a fresh one in since it has been a week. Grant is not looking forward to this but I'm sure he will handle it like a champ. He actually tripped and fell on his chest in the playroom 2 days ago. As soon as he saw his nurse, he told her about it and wanted her to check it. She was so impressed that he was so big about it. Please pray for our sanity as we continue to wait.....

Tuesday, February 21, 2012

Still Hanging at the Hospital

Well, yesterday Grant's ANC dropped to 30 and today it is up to 80, neither of which will get him out of the hospital. So, we wait another day. I think he feels okay and he keeps getting good reports otherwise from the doctor. He is pretty weak and doesn't have much of an appetite except for breakfast. He got a little dehydrated yesterday so they hooked him back up to fluids overnight. They have taken him off them again today but we are really pushing the liquids. He slept all night, but seemed to be restless. He is still coughing quite a bit. He has a long road before he is back to normal activities. Our hope right now is that we can get him home so it can be easier on everyone. Thank you for your prayers and please remember to pray for Trent too. This has been a little difficult on him, but he is being a trooper too and really looks forward to seeing his brother.

Sunday, February 19, 2012

Creeping Up

Grant's ANC was 10 yesterday. It was 40 today. So Dr. Heym has said he can go home tomorrow if it is above 100. Please pray for a good, restful night and strong counts in the morning.
Thanks to our visitors today that helped entertain Grant and pass the time. He is feeling well and played a lot of basketball today. It got a little hot though, playing basketball with a mask on. We took it off really quick for this picture.

Saturday, February 18, 2012

Aww Shucks!

My how things have changed. He was perfectly content on his ipod and watching ESPN. The nurse actually commented that we were making him watch that channel and he could watch cartoons if he wanted. Little did she know....that was his request.

Grant started getting a little congested and coughing on Thursday. By Friday morning, he woke up saying he did not feel well. Of course, he wasn't going to let that keep him from school. (Have I mentioned that he loves school!) But, the first thing he said to me when I picked him up from school yesterday was "I had a hard day." When I asked why, he said that he didn't feel good and his head hurt all day. We went home and he curled up on the couch. As we sat there, he temperature just started to rise. The magic number for calling the doctor is 101. He was at 100.9 for most of the evening. It finally crossed that barrier. We called the doctor and headed to the ER about 10:30. Grant was very sad about having to go.
They drew labs and also tested for the flu. The flu test came back negative, but his counts were extremely low. His white blood count was .5 and his ANC was 10. They ordered him an IV antibiotic and admitted him to the hospital. They also gave him some tylenol for the fever. He handled everything like a champ and was in much better spirits about having to be there. He was actually very impatient about waiting for the doctor to tell us whether we could go home or would have to stay. When the doctor told him he had to stay, he actually said "yeessss, I want waffle sticks for breakfast." Who likes hospital food? Oh well, at least he didn't cry over having to stay. Give the kid some waffle sticks!
Hopefully, we will see the oncologist today. His counts will have to come up and show they are on a path to recovery before he can go home. They will hold chemo until his ANC reaches 750. Thanks for all the prayers and we will try to keep you posted.

Tuesday, February 7, 2012

More of the same....

Grant is doing so well with treatment. He had his regular monthly clinic visit yesterday. The biggest problem we are having is keeping his counts DOWN. The treatment is calculated to keep his counts suppressed but not bottomed out. This range is somewhere between 750-1500. Grant's counts have been consistently over 2000 for the last several months. We have increased chemo every month in an attempt to hit that target range. So, it was increased again this month. Apparently, he is just able to process and digest the medication well. Just to give you an idea, he is now taking 9 pills of the chemo he takes once a week and that is just one of the medications he takes. But, when he had to take them last night (all at the same time), and I commented on how many it was, he said, "They don't even cover my tongue Mom." What a champ!
Also, I have to praise him for how brave he was yesterday. There was a new nurse at the clinic, which makes me nervous. And, Grant has to sit on the bed by himself now b/c he is too big for my lap, so we sit beside each other. The nurse counted to 3 and went to poke him and missed his port. Grant was sitting so still and patient. She had to take it out and poke him again. Then, she kept pushing really hard for some reason. Grant very calmly asked, "Why are you pushing so much?" I thought it was a very good question. I don't have a lot of patience for people hurting my child, so I was trying not to look. Grant handled it much better than I wanted to. When I was praying for him last night, I thanked God for sitting on that bed with us and helping Grant to be brave. Grant verbally agreed with a "yeah, yeah" during my prayer and has commented on it several times since. He trusts his God!
The only side effect he is experiencing is some stomach cramping periodically. His least favorite thing is having to miss school for appointments. School gets out at 2:45 and I picked him up at 2:15 yesterday and he was upset. We go back in 4 weeks....