Who would have ever thought that we could get so excited about Grant getting chemo? His ANC almost doubled since Monday to 1460 today. He did well after having almost 3 weeks off. He did have to have his port accessed today, which went fairly well. There was still some screaming and crying, but he recovered very quickly. He got 2 drugs through his port. The first one was Vincristine, which he has been getting somewhat regularly throughout treatment. It is the one that causes him to have some leg pain/restlessness. That causes him to have some trouble sleeping as well. The second one is the drug he has been getting by spinal tap. During this phase of treatment he will get it through his port. Every 10 days, they will increase the dose he gets unless he gets to a point where he can no longer tolerate it. Then, they will continue to give him the last tolerable dose for the rest of this phase. He may be able to increase the amount all the way up to the last treatment. We will just have to watch to see if it is too hard on him at some point. This feels like we are putting him through some kind of torture to see if we can push him to his limit.
The entire clinic celebrated with us that Grant reached the necessary numbers. Even a family we met today saw us again in the playroom and were so excited to see that Grant was getting his chemo. We just so appreciate everyone that is in this fight with us.
We also celebrated with lunch at Sam's, of course. It was very interesting b/c we met another family who has a little girl that just finished all of her treatment. She is completely finished and offered much hope to me in such an innocent way. She told me she used to have leukemia and that she used to be bald like Grant. She had beautiful, long, brown hair! They were such an encouragment. We also saw another family that we see at the clinic. It was the place to go for cancer patients today!
Grant will go back to the clinic next week just to check numbers and make sure he doesn't need any transfusions. He will not get any more chemo until the following Monday.
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It was so good meeting you yesterday. Your children are beautiful. Grant is so cute. I have read through a bit of his story, it always amazes me to read other people's story and see how it compares to ours. Thanks for sharing.
ReplyDeleteWhat a sweatheart Grant is. I will be praying for him and your family.