Back on the Roller Coaster

Grant had his regularly scheduled clinic visit today, which included a spinal tap this time. He did amazing! He's getting so good at this, I'm not going to have anything to report pretty soon. He got cream on with no problems. He waltzed into the clinic talking to everybody. He even laughed while he got his port accessed. I know! Crazy! But, then he realized he was going to have to get a back poke (spinal) when the nurse asked to put cream on his back. He did it, but did not want to. When he went in to have his exam with Dr. Heym, he would not talk to him. It was weird b/c he usually does and he had been chatting it up with everybody. Then, when he got loopy, we went in for his procedure. We were waiting for Dr. Heym to come in the room with us and all the nurses. So, somebody said, "Where is Dr. Heym?" And Grant chimed in with, "I don't want Dr. Heym in here!" That's why he hadn't wanted to even talk to him, b/c he knew he was going to be giving him a back poke. He's no dummy! He cried during the actual poke and it breaks my heart to see those big, sad tears dripping off his face as he leans forward onto a pillow. But, he recovers pretty quickly. He still has to lay flat on his back for 30 minutes after the procedure to help prevent headaches. That's always a funny time b/c he is loopy and very talkative. All in all, it was a successful day at the clinic....successful, not easy.
Grant was nauseous off and on for the rest of the day. After the loopy medicine wore off, he began crying....about everything. He cries at the drop of a hat. Then, he's frustrated b/c he can't control why he is crying, which makes him cry more. Then, I cry. My heart breaks for him.
Please keep us in your prayers this week as we all walk a tough road.