We Survived

I picked Grant up from school a few minutes early to get to the clinic. From the moment I walked in to get him, his anxiety grew. We put cream on at school and headed to the clinic. Grant was quiet the whole way there. He did well with accessing his port. But, the anxiety grew even more when we had to put cream on his back. He recovered quickly though. He had taken his loopy medicine, so his exam with Dr. Heym went pretty smoothly. Then, we went straight to the procedure room. Things really escalated at that point. Dr. Heym didn't even wait for the nurses to get everything set up. He just came in and got started, trying to prevent any extra anxiety for Grant. Grant did calm down for a little while when Dr. Heym was showing him what he was doing. But, when it was time to get the poke, Grant just started screaming. There was terror in his eyes and that is one of the most awful things I have ever seen. I feel so helpless. I sat directly in front of him with our foreheads touching trying to sooth him. Again, Grant recovered fairly quickly after the procedure was over. We are going to be exploring other options for sedation for the future. Please pray that Rudy and I would have wisdom to do what is best for Grant.
Grant also got more chemo in his port and started steroids today. His counts were still way up, so his at-home oral chemo was increased again.
The evening at home had it's ups and downs. He was very emotional, which is pretty usual. He was really groggy and lethargic when we got home. He ate some dinner, and some more dinner, and some more dinner and that pepped him up. And, of course, he watched some football with his dad. But, when it was time to go to bed, he got very weepy. Bedtime was very hard. (For those that don't know, Rudy had foot surgery about 2 weeks ago. He's pretty much bedridden when he is at home.) Grant told us tonight that he needed to stay in our bed and eat breakfast there b/c his back was hurt. He is so perceptive.
Trent has been so sweet. He wants to take care of Daddy and Grant. I am tired, not so much physically, but emotional and mentally. Please continue to keep our family in your prayers. We know God is still holding us in the palm of his hand.

Shout for joy to the Lord, all the earth.
Worship the Lord with gladness; come
before him with joyful songs.
Know that the Lord is God. It is he who
made us, and we are his; we are his people,
the sheep of his pasture.
Enter his gates with thanksgiving and his
courts with praise; give thanks to him
and praise his name.
For the Lord is good and his love endures
forever; his faithfulness continues through
all generations.
Psalm 100