More Meds

Grant had his regular clinic visit on Monday. On the way to school that morning he told me that he wanted me to tell dad that he did really good at clinic b/c he was going to laugh when he got his poke. I responded that I would fall over if he laughed when he got his poke. No need to worry....I did not have to fall over. He screamed and squirmed and made it miserable. But, when we took the "noodle" out, he did laugh. All this tells me is that he has full control and is choosing how he wants to behave. Anyway, we accomplished what we needed to accomplish. God is good! Grant's counts were still elevated above the optimum levels, so he got another increase in his chemo. He is taking A LOT of medication! Dr. Heym also increased his steroids. Grant has seemed to handle the increase pretty well. The only real struggle was at his baseball game. He got thrown out at first twice and that was just too much. The heartbreak coupled with steroids was not a good combination. He just cried...twice. So, of course, I cried. As normal as Rudy and I would like it to be that he is playing baseball, it's not normal. Did I say he is taking A LOT of meds? And then I reverted back to feelings I had at the beginning of wanting to explain him, not so much to the parents, but especially his teammates. I didn't want them to think Grant was a crybaby. They were so wonderful to him though, patting him on the back and telling him to get it next time. And God has given us some wonderful new friends whose son battled cancer. He is on Grant's team. It's so great to have someone living life with you that understands your feelings. God is good! Grant has had a few things happening that may or may not be side effects. We would just like you to pray for him. He has been getting some spots on his face that come and go. They come up in the same spots each time. Dr. Heym has looked at him and pictures of him when they are worse and does not seem concerned. I would just prefer he not have spots on his face! He is also having some leg pain, much like he did at the beginning of treatment. It usually happens in the car and is a pain behind his knees. Lastly, he has been waking up in the night frantic. He is screaming and sometimes running in our room. He goes to the bathroom and we have a fairly lengthy conversation (for 1 a.m.). He has described nightmares to me. The weirdest part is that he does not remember ANY of it in the morning. Nothing. I feel like I am constantly battling living in a state of fear. I know God is in control and holding each one of us in the palm of his hand. God is good!