Tuesday, June 9, 2009

Procedure Day

Today Grant went to the clinic in Grapevine for his procedure. Dr. Heym performed a spinal tap to administer chemo. into his spinal fluid. Grant was completely awake and I was in the room with him the whole time. I KNOW....for those of you who know how sqeamish I am, this was a big leap. I was so busy trying to keep Grant distracted by the movie we had playing, I didn't have time to worry about myself. Grant had gotten an oral "loopy" pill. It made him a little relaxed (he couldn't walk straight), but he was still very aware. The thing he liked the least was the nurse having to hold him in position. Then, he was supposed to lay flat for an hour. Well, that didn't go so well. After hearing us struggle with him for 30 min., Dr. Heym said we could just let him up. And you are thinking...."let him up"? Yes, we were physically having to hold him down for most of that time. He also got his port accessed again for chemo. today and the next 3 days. So, we are "bringing his noodle home with us." He has a short IV that hangs under his shirt and we call it his noodle. He's actually very comfortable with it and makes me a little nervous when he plays with it. He has been showing it to people very proudly.
Grant had his blood counts taken today. Everything looked REALLY good except the hemoglobin (red blood cells). It was already low today and will probably go lower over the next 3 days of treatment. They will check his numbers again on Thursday and he will probably get a blood transfusion on Friday. He has not acted like it's low. He has still had good energy and has not seemed pale. His appetite has been a little better today, but still not good. Dr. Heym said his lack of appetite is expected and not to be concerned.
Grant is extremely smart and has figured out how to play his situation to his advantage. He is really starting to push his limits. Everyone jumped at his every wish for a while and now it's coming back to bite us. We are all having to adjust....again.

1 comment:

  1. Amy you are right I find it hard to believe that you were able to stay in while the procedure was being done. You go girl...next you will be tell us you are going to nursing school. LOL

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