Monday, October 19, 2009

Delayed Intensification

Grant started his last phase of treatment before maintenance today. The protocol calls for this last really intense phase of treatment b/c the studies have shown that the results were much better for kids who had this phase. But, boy, are we in for a long 8-10 weeks.
Grant had an absolutely GREAT day at the clinic. He had to be accessed to receive 2 chemo drugs through his port. He also had a spinal tap. Through all of this poking and discomfort, all he did was say he didn't like it and fuss a little. It was amazing and wonderful. I know that this was the answer to so many prayers.
But, the treatment today has hit him really hard. By this afternoon, he was feeling pretty terrible. He is very nauseous and is vomiting regularly. He is having trouble keeping anything down. He did finally eat 2 pieces of bread and butter and kept them down this evening. He is still battling a head cold and is very congested, so that is not making things any easier. He also started steroids again today and will be on them for 7 days.
We are very anxious about the next few days. B/c Grant had the chemo by spinal tap today, he will have to take the "rescue" drug to help prevent another TIA. And it is so hard to see him not feeling well and just not himself. For example, Grant just cried inexplicably for about an hour this afternoon. I didn't know what to do b/c he didn't know why he was crying. So, I basically just sat next to him and cried too. :(
Please just know that we appreciate and covet your prayers! Our God is big and He cares about us. Even when things seem out of control and frustrating, He holds us in the palm of His hand.

1 comment:

  1. This is the toughest time. I am so sorry you are having to go through it. Though it may not seem this way now, maintenance is a huge light at the end of this dark tunnel. Please know that I am praying and will be happy to chat about any of this mess any time.

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