Tuesday, September 14, 2021
SO HAPPY
Friday, August 27, 2021
Road to Recovery
Grant had a checkup at the urologist this morning. He told me yesterday that he was praying that the doctor was going to tell him that he was a miracle...one in a million...and was completely healed. We discussed how that was completely possible because God is God. But, if not, He is still good. Well, while the report was not of complete healing, he did get good news. Notably, he was cleared to start driving again. The doctor also told him he could start being more active (in isolation). He can do light workouts and even shoot a basketball (alone). This is all really great news. Today marks 4 weeks since the accident. Grant had hit a mental wall this week. He was very frustrated because of how limited his activities, and therefore social interactions, had been. We are thankful for a move in the right direction today.
Physically, Grant is feeling better. He is not needing any pain meds and is mainly just sore on days he is more active. The sonogram today still showed a very large blood clot around his kidney, which we are just waiting to dissolve. This is going to take a while as he lost 30-40% of his blood in the original bleed. The kidney was nearly cut in half, so the sonogram showed that there is also a clot between the 2 halves that will need to dissolve before the kidney can heal itself. And the kidney is functioning. He is no longer bleeding, just sloughing blood from the clot. That is great news too! He's also been seeing the chiropractor 3x a week. His alignment is looking a lot better. She's still not doing a full adjustment, but just the muscle release has been significant. Slow and steady.....not so fun for anybody, especially a 15 year old boy.
Again, we can not thank you all enough for how you have supported our family through this, especially the prayers. Grant is still praying to salvage some of his basketball season, which starts next week.
Wednesday, August 11, 2021
Baby Steps
Grant has been making small improvements each day. His appetite is returning. I've caught him in the pantry snacking the last 2 days. That's a praise! He's sleeping a little better each night. He has not slept in his own bed because his room is upstairs and he's not quite ready to tackle those yet. But, sleep is good for everyone! His blood counts had also increased at his visit to the pediatrician on Tuesday. It's going in the right direction. I also just want to say THANK YOU for every card, text, gift, meal, prayer, visit and every other way that you guys have loved on our entire family. It's truly been overwhelming and we are so very grateful.
Some prayer requests:
Grant is still bleeding. This was concerning to us, his pediatrician, and the urologist UNTIL the urologist looked at his medical chart including his CT scans (which he did prior to his appointment on Friday and gave us a call today). He kept reiterating how serious of an injury this was and that Grant is just lucky to have his kidney. So, at this point, we are still waiting because he will need to stop bleeding eventually. Also, we know that he's not just lucky. He is being held in God's sovereign hand.
Grant is severely out of alignment. You can see from the picture that if he stands on his right foot, his left foot does not touch the ground. This is obviously uncomfortable in most positions; standing, sitting and lying down. The chiropractor told him that it can be corrected, but it is going to be a long, slow process. Right now, he needs his muscles to release so that he can be adjusted. And that is secondary to caring for his kidney.
Thank you for praying!
Saturday, August 7, 2021
He's home!
Friday, August 6, 2021
Prayer list
A few prayer requests for today:
Grant's hemoglobin dropped again last night to the point where they felt like he needed a blood transfusion. He is currently getting a unit of blood. Pray that he has no reactions to the blood and that it gives him the energy that he needs. This was a tough one for me. Grant is no stranger to a blood transfusion. They had to transfuse all night the day we took him in for his leukemia. And he had them several times along that journey. He doesn't remember them and has asked me a lot of questions, but I sure do. While it's disappointing that his body couldn't keep up on it's own, I'm thankful for the tools we have to help him. He has joked that he hopes it's not girl blood or he won't know how to "identify". :)
The doctors also decided to turn off the infusion that was flushing his bladder to prevent clotting. This was a pretty scary thing for Grant because the clotting had been a problem and VERY painful. It has been off since 4:30 p.m. yesterday. He has not had any clotting issues, but there is still blood in the output. Pray for wisdom today as his team of doctors makes decisions on next steps. And pray for peace and comfort for Grant during the unknowns. They would like to be able to remove the catheter because they don't like them to remain in this long. But, they do not want to encounter a problem and have to replace it.
The blood in the output indicates that his kidney is still bleeding. Please pray that the bleeding will stop.
Please pray for the kids...Trent, Cori, and Maci. Their world has been rocked. Their brother is missing. They've had to be updated on where they are going to be for the next day every night. We have some rockstar friends that are making this as easy and fun for them as possible and we are so grateful.
Also, please continue to pray for Rudy and me. We are tired...mentally, physically and emotionally. The hospital sleeping arrangements are not kind. The trips back and forth are long. Eating is difficult. The responsibility of advocating for Grant is heavy. It feels like the world is moving on around us, but we are stuck. But God is good. And he is providing just what we need and we are so thankful. And I just want to say, there is no one I'd rather go through hard times with than Rudy. He is a rock and always pointing us to Jesus.
Thank you for your prayers!
Wednesday, August 4, 2021
Sovereign God
Tuesday, August 3, 2021
Update to my update
I typed this this morning and I wanted to still publish it. A more recent update is below.
Grant had a pretty good day yesterday and slept well last night. This morning his pain has increased again so we are trying to get that under control. This has definitely been a roller coaster ride so far. It just feels like we aren't making much progress. Everything seems to be remaining about the same. He has been agitated and seems frustrated this morning. He got a CT scan around noon yesterday, but none of the doctors have been in to tell us what it showed. That has been frustrating for me. Some of his blood counts dropped overnight and there was increased blood in his urine. It sounds concerning, but I don't really know what any of that means. Please pray for: a spirit of peace over Grant, that his pain would subside, that the doctors would give us some answers, and of course, for complete healing.
Update:
The trauma team came in to give us an update. His kidney still looks very beat up which was to be expected. But, God totally revealed himself in the report. When he injured the kidney, it nearly split it in two. Most people have one artery going to their kidney. If that had been the case, he probably would have lost at least half his kidney. However, God gave Grant 2 arteries going to his kidney. One went to each side and that's the reason they were able to save his kidney. God created Grant perfectly at birth. He's not surprised by anything. God is so good. The rest of the report pales in comparison to that story. There is still blood in his output because of the trauma to the kidney. We are waiting for that to heal itself (God's design), enough to move to the next step. Basically, he's going to be here for a few more days at least. God is doing the healing and we just have to wait.
Grant got some pain meds and has had some visitors. The combination has helped him feel better. We are actually planning a wheelchair ride outside later. He's going to continue to be up and down for a while. We are just along for the ride.
Thank you again for your continued support. The texts are very encouraging and your acts of kindness are overwhelming.
Sunday, August 1, 2021
Here we are again….
Tuesday, April 28, 2015
Happy 9th Birthday!!
Monday, April 28, 2014
Cured?!?!
We are celebrating this day with a Rangers game. Baseball is an obsession for Grant. And we have been able to attend many games and do some fun things with the Rangers through cancer organizations. The Rangers have never lost a game that Grant has attended.......Let's go Rangers!!
Wednesday, August 21, 2013
A Whole Year?!
As we began our school day yesterday, Grant was looking at the calendar. He immediately said, "It's been a year." It took me a second to realize what he was saying. Then he clarified for me, "It's been a year since I stopped taking my chemo." Yes it has!! Can you believe we have lived and entire year of "normal" life? That seemed like a day that would never come in the midst of treatment. But, here we are - a whole year!
Grant is still seeing Dr. Heym regularly. He will go in September and then begin an every other month routine. Each time, they do a blood analysis and a physical. Grant has been passing with flying colors.
However, we did discover something unusual. A couple of months ago, Grant was subconsciously touching his chest where his port used to be. I reminded him it wasn't there. He told me very seriously that something was there. I thought it was all in his head until I started looking closer and touching it. It sure did seem like something was there, but I kept telling myself there couldn't be. So, we finally asked Dr. Heym about it. I was thinking he was going to tell us it was scar tissue. Grant is very thin and it is easily visible. But that is not what he told us. A piece of Grant's port was left in his chest. What?! How does that happen?
At that point, the doctors gave us 2 options. They said that he could probably leave it in and live "harmoniously" with it for the rest of his life. Or we could have it removed. "Harmoniously" sounded like a nice word, but we are talking about the rest of the life of a 7-year old. There were also some other risks, although unlikely, risks nonetheless. So, to the great disappointment of Grant, we have opted to have it removed.
Grant will go into the surgery clinic today at 3:30 for the procedure. They are going to do it in the office with a local anesthetic. Please pray that Grant will be cooperative and this will go smoothly. We've tried to sweeten the deal with his choice of lunch before and Sweet Frog's yogurt after, but he's still upset that he has to do this at all.
This is very frustrating as a parent. But, at this point, all we can do is deal with the situation at hand. We have so much to be thankful for. God has answered so many prayers and never left us. And He will go with us today too!
Monday, November 19, 2012
The Port is Out
Saturday, November 17, 2012
No News is Good News
Tuesday, August 28, 2012
First Grade
Sunday, August 26, 2012
Win 1 For Me...
Back to business - - - Grant has a clinic appointment tomorrow (but no chemo). And then he will start 1st grade on Tuesday. Praise God!
Monday, August 20, 2012
It's THE END!
When I told Grant I was going to blog about his last day of chemo, he wanted to "say" a few words:
I am excited about being done with treatment. I'm ready for my port to come out. Thank you for being nice to me and praying for me. I'm sad that I'm not going to see the grown-up friends that work at the clinic as much. I hope my leukemia does not come back. Please come to the Cats baseball game with me.
Rejoice in the Lord ALWAYS!
Friday, August 17, 2012
Little Scare
He is so excited to be finished. I have heard him tell more than one stranger that he is almost finished with his chemo. Please come celebrate with us at the Cats game!
























