Day 28

Today wasn't such a great day, according to my mom. He is just having such a hard time with physical activity b/c he is so uncomfortable. For all those mommies out there, it's like he is pregnant. He's not really chubby, but his tummy is just awkward for him. He walks, sits, lays, etc. just like I did when I was pregnant. It really makes me feel bad for him. ;) He asked to go to bed at 6:15 tonight. He rested, but we managed to keep him awake until 7:45.
Well, we've finally made it! Tomorrow is Day 29! He has an appointment at the clinic in Fort Worth tomorrow at 7:30 a.m. He will get a dose of chemo in his IV. After we get his CBC results and he sees the doctor, we will go over to the special procedures area of the hospital. There, they will do another spinal tap, give him a dose of chemo in his spinal fluid and do another bone aspiration. He will be put completely under for this procedure. The worst part about that is that he can't eat after midnight. We talked about the fact that he won't be able to have breakfast tonight, so at least it won't be a surprise in the morning. He is still not going to be happy about it though. We will also give him his last dose of steroids in the morning, for right now. He will have to have them again at some point.
We will not know what comes next until we get all the results back from these tests. We should hopefully have a game plan by Friday. We are very curious to find out where we go from here.
It's probably going to be a long day at the hospital tomorrow. And an even longer morning, explaining why he can't have anything to eat.