Day 9

Grant had another good day and got a good report from the doctor. He said that his blood levels did go up, but just a little. That was all he was looking for though. They just needed to go in the right direction on their own. He is very confident that we will be able to go home on Monday. Grant will then begin his outpatient care with his first clinic visit on Wednesday. They will be checking his blood levels and administering the IV chemo. We will continue the steroids orally at home. He will not have to have any more "procedures" until day 29.
Last night he had a little mishap. He started complaining about his port. I thought it was just itching from the dressing. But, he kept complaining. I had the nurse come in and check it and she determined that it was not in right and needed to be redone. They took him to the treatment room and he screamed the whole time. They were only doing something that hurt for about one second. But he was really scared. He was fine as soon as I was able to go get him. It has not bothered him since.
This morning I had to stick a plastic cover over his port to give him a bath. He screamed that entire time too because he knew it was going to hurt to take it off. He was anticipating the pain the whole time.
He's done really well at taking his medicine. He starts fussing the minute the nurse walks in with those 2 syringes and says "I don't like those, they're yucky!" But then he takes them like a champ. I say all this to make the point that he is very aware of the things that are going on.
The doctor allowed Grant to be disconnected from his IV fluids today. That makes it much easier for him to get up and move around.
Trent got to come play again this evening. They gave each other a big hug when they saw each other. So Sweet!